The Rapidian

MI Pediatric Hydrocephalus Foundation to host 1st annual Walk

1st Annual Michigan Pediatric Hydrocephalus Foundation's Walk & Family Fun Day for Hydrocephalus Awareness
Underwriting support from:

About MI PHF

The Michigan Pediatric Hydrocephalus Foundation is run by parents Donna West (Grand Rapids area) and Jason Adams (Flint/Detroit area) who do this work as volunteers.  Each of the directors has a child with hydrocephalus and makes this mission very dear to their hearts. Michigan has been a chapter of the Pediatric Hydrocephalus Foundation for approximately 4 years. Money that is raised by the MI PHF is donated to grants and research projects that are hydrocephalus specific.  For the last two years the MI PHF has donated to a research grant at U of M in Ann Arbor. 

Willow West, 4 years old

Willow West, 4 years old /Marcie Bergstrom

PHF PRESS RELEASE  EVENT ANNOUNCEMENT  
AUGUST 15th: Awareness WALK & Family Fun Day for Incurable Pediatric Brain Condition  in Grand Rapids, MI              
For Immediate Release                   Contact: Michael Illions 
Friday, July 10, 2015                       (732) 634-1283  
HydrocephalusKids.org                   [email protected]
 
WHAT: Please join the Pediatric Hydrocephalus Foundation in the City of Grand Rapids on Saturday, August 15th, 2015 for the 1st Annual Michigan Pediatric Hydrocephalus Foundation’s WALK & Family Fun Day for Hydrocephalus Awareness! 
 
The event is hosted by Grand Rapids resident’s Jon & Donna West, whose 4 year old daughter Willow has Hydrocephalus and has survived 12 brain surgeries.  Willow will begin Preschool this year at Congress Elementary. Mom, Donna serves on the PTCC at Palmer Elementary.  Willow gets her medical care at Helen DeVos Children’s Hospital, where Dr. Lawrence Foody is her Neurosurgeon. 
 
WHERE: Riverside Park @ 2001 Monroe Avenue, Grand Rapids, MI ~ 11:00am with great live music, plenty of fun activities and our FIRST EVER WALK in Michigan for Hydrocephalus Awareness! 
 
FAST FACTS: About Pediatric Hydrocephalus Foundation, Inc.   
 
The Pediatric Hydrocephalus Foundation, an all-volunteer non-profit 501(c) (3) charitable organization, educates the community by raising the level of awareness about hydrocephalus and provides support to families, friends, and children affected by this brain condition.   
 
The PHF also raises money for and works with the medical community in searching for a cure and additional treatment options for those with Hydrocephalus. Additionally, the PHF advocates on behalf of the members of the hydrocephalus community and works with policy makers at the state and federal levels to raise awareness and advocate for more research and support in the fight against hydrocephalus. All donations are tax-deductible. Visit www.HydrocephalusKids.org for more information.   
 
WHEN:    Saturday, August 15, 2015 
                10:00 a.m. Registration
                11:00 a.m. Event Starts    
 
WHERE:  Riverside Park 2001 Monroe Avenue (Enter via Guild Street)
                Grand Rapids, MI 49505
 
COST:  FREE to register and attend. Donations greatly appreciated.  
 
TO REGISTER:  Please visit active.com/donate/phfwalkmi2015

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